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IARC 60th Anniversary - 19-21 May 2026

Session : 20/05/26 - Posters

Supporting childhood cancer registration through the ChildGICR educational programme: Impact evaluation

THABUIS T. 1,2, DOLYA A. 1, FOX IRWIN L. 3, ZNAOR A. 1, MERY L. 1, SANTANA V. 3,4, MOREIRA D. 3,4, STELIAROVA-FOUCHER E. 1

1 International Agency for Research on Cancer, Lyon, France; 2 Université Claude Bernard Lyon 1, Lyon, France; 3 Department of Global Pediatric Medicine, St. Jude Children's Research Hospital, Memphis, United States; 4 Department of Oncology, St. Jude Children's Research Hospital, Memphis, United States

Background: 
To support the IARC Global Initiative for Cancer Registries development (GICR) and the WHO Global Initiative for Childhood Cancer (GICC), IARC and the St. Jude Children’s Research Hospital (SJCRH) developed in 2020 a ChildGICR programme, “Targeting Childhood Cancer through the Global Initiative for Cancer Registry Development”. To roll out the ChildGICR educational programme, an online Masterclass was completed in 2021 by 22 participants from 16 countries, including 12 middle-income ones. The participants developed seven teaching topics relevant to childhood cancer registration and qualified as regional trainers in childhood cancer registration. They also helped to disseminate the teaching topics to 125 professionals, mostly from middle-income countries, through four online end courses in 2022-2024. 

Objectives:
The objective is to evaluate the impact of the ChildGICR educational programme. 

Methods: 
We developed two online questionnaires in REDCap tool, separately for the participants of the Masterclass and for those of the four end courses. We analysed the collected qualitative and quantitative responses describing patterns of use of the acquired knowledge and intended and unintended changes generated by the training, to evaluate the impact that the participants have made following the programme.

Results: 
Twenty of 22 Masterclass graduates still in the field completed their questionnaire. Among them 18 used the knowledge acquired or material developed during the Masterclass. Most commonly, they used the knowledge/material for teaching (N=15), expansion of knowledge (N=12), scientific communication (N=8), advocacy (N=8), fundraising (N=3) and other purposes (N=3). Eleven trainers taught in one or more of the end courses. 

The second questionnaire was completed by 65 of 124 graduates of the end courses; the rate per course ranged from 27% to 62%. By income level of the country of residence, four respondents reported low-income, 28 lower-middle-income, 15 upper-middle and 10 high income. The average level of satisfaction with the completed end course was 81% and the participants reported remembering 61% of course content at the time of questioning. Following the course, 50 participants retained active interest in childhood cancer registration which was demonstrated by working in childhood cancer registration (N=27), formal or informal transfer of acquired information (N=27), continuous study of relevant topics (N=26), engaging policymakers (N=10), seeking additional formal education in the field (N=9), bringing childhood cancer to social media (N=7) or to general media (N=5). For 27 participants, the course helped to upgrade their working assignments, including increased responsibility (N=19) and 31 respondents contributed to the development or improvement of childhood cancer registration, including 25 due to their participation in the course. Fourteen participants contributed to publications related to childhood cancer registration, of them 11 due to their participation.

Conclusions/Implications: 
Based on the responses collected in the two questionnaires, ChildGICR educational programme has a significant impact on the capacity building in childhood cancer registration, including in LMIC. While interactive courses are preferable, an online self-paced course is under development.